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Maternal Health Learning and Innovation Center

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A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting

By Anastasia Y. Gordon, Baylee De Castro, Larry Rand, Linda S. Franck, Monica R. McLemore, Norlissa Cooper, Schyneida Williams, Shanell Williams
Added: August 24, 2021
LearnPartner Content

Abstract

Involvement of patients and the public is now recognized to be essential for the good conduct of research. Patient and public involvement in research priority setting and funding decisions is only beginning to be recognized as important, and methods for doing so are nascent. This protocol describes the Research Prioritization by Affected Communities (RPAC) protocol and findings from its use with women at high socio-demographic risk for preterm birth. The goal was to directly involve these women in identifying and prioritizing their unanswered questions about pregnancy, birth and neonatal care, and treatment so that their views could be included in research priority setting by funders and researchers. The RPAC protocol may be used to meaningfully involve under-represented groups at high-risk for specific health problems, or those who face disproportionate burden of disease, in research strategy and funding priority setting.

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Written by:
Kelli Sheppard
Published on:
August 24, 2021

Resource Information

Author: Anastasia Y. Gordon, Baylee De Castro, Larry Rand, Linda S. Franck, Monica R. McLemore, Norlissa Cooper, Schyneida Williams, Shanell Williams
Audience: Clinical
Type: Report
Category: Equity, Understanding Communities/Areas/Populations
Dimension: Learn
Topics: Community, Equity, Evidence-based, Lived Experiences, Preterm Birth
MHLIC is committed to providing reliable, accurate resources that will increase the user’s knowledge and/or ability to improve the state of maternal health in the United States. Some of the resources may be primarily informational and others may be oriented more towards capacity-building to implement a program or action. Many will be a blend of the two. Read our full terms and disclaimer here.

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This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number U7CMC33636 State Maternal Health Innovation Support and Implementation Program Cooperative Agreement. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS, or the U.S. Government.
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